Things are changing…

It’s been a while since I have been around here. Things were rough there for a while, well they still are as far as employment. Still cannot stand for long periods, the pains become excrutiating. But seems as if I have found a solution for pain and it’s not meds. It’s a diet. So if you want to know more write me or chat with me and we will discuss. Not posting it here at least not just yet…

Doubts run through my mind…..

I am seriously thinking about filling for disability. Things are getting tough, it’s getting hard to drive. Panic mode set’s in when I think of not being able to move my neck any longer. Lord God Almighty give me the strength I need day by day and help me in the time of need.

Hope I can have a good day today at work…

Just found this today – Diet for a Pain-Free Life…

Well all of us with AS know that this is almost impossible, but you know what for as healthy as this looks it’s worth the try and the effort. Already asked the wife to purchase two of my favorites and I have already started. Will keep you informed of any progress.

Stiff joints? Sore muscles? Instead of popping pills that can cause side effects, reach inside the fridge.

Artichokes, Blackberries, Red Peppers, Walnuts, Ginger, Pineapple and others:

Artichokes: antioxidants help clear inflamation from the body. reducing pain in arthritis patients, according to a Nutrition & Metabolism study. Artichokes have among the highest levels of antioxidants of all veggies, says the USDA. Aim for: A minimum of 1/2 cup or as many as 2 cups of artichoke hearts per day in a salad or a pasta dish. (personally i would not use the pasta because of the starch).

Blackberries: All purple berries are chock-full of vitamin C, which helps form connective tissue and build joint-cushioning cartilage. But blackberries pack a bonus: They contain a salicylic acid, a pain-squelching ingredient that’s also in aspirin. Aim for: As little as 3/4 cup will benefit you, says Dr. Mcllwain or snack on as much as 2 1/4 cups daily, tossed in a yogurt or as a fruit smoothie.

Red Peppers: Red bell peppers contain compounds that relieve pain and inflammation as well as a phytochemical that actually triggers the release of endorphins, nature’s own pain relievers, says Dr Mcllwain. Aim for: Between 1/2 and 2 cups cooked in a stir-fry for dinner or stirred into soup.

Walnuts: these nuts are high in vitamin B, which has been linked to improving range of motion in joints. They also enhance the body’s own production of natural steroid that can help prevent osteoarthrithis, Aim for 4 to 8 nuts for a crunchy afternoon snack.

Ginger: Recent reserach in Arthritis & Rheumatism reports that ginger reduced kneed inflammation in osteoarthritis patients in just six weeks without side effects (like GI bleeding) linked to OTC medications such as Ibuprofen. Aim for: 2,000 mg in tea-bag form or 1tsp powder or 1oz fresh ginger.

Pineapple: An enzyme called bromelain in this tropical fruit enhibits the release of chemicals that cause pain and swelling in the body, says Dr Mcllwain. Aim for: 3/4 cup or as much as 2 1/2 cups of fresh pineapple to your daily diet.

This is not my article somebody handed it to me has no reference or anything only that appears to be written by Dr Mcllwain, hope he does not get upset for me sharing with my AS friends on the NET. After all we are always looking for solutions to our aiks and pains. The natural way.

Not bad of a day…

IT’s kind of good when somebody like me that suffers from AS has a kind of normal day. I am kind of the stuborn determined person that refuses to pay a visit to the doctor’s any longer, because all the want is a co-payment and then give u a prescription to fill out and send you to the pharmacy. I am against all that. And to be honest with you the last 3 years have been the best dealing with my AS. My posture is not the best. But just the thought of not taking all the drugs makes me feel good. My health has been the best in years. So go figure. I do believe the Lord has been my strength though, could and would not be able to do it without Him. He is my everyday strenth and support. FAITH is the Key. By the way looking for tips of driving traffic to two major sites at work, http://www.iBead.com and http://www.essencebeads.com any help will surely and gratefully apreciated. You can send ur comments through here. Get enough spam on my emails.

Not a bad day…

Today is not a bad day so far. Although those are far and apart but so far all is good. But still looking for a cure is there one out there? Is there something new out there except for drugs and docs that don’t know what they are doing ????

The hardest things to deal with…

Because of my condition, I get the looks and people observing, thinking what is wrong with him, and some will actually come up and question what your problem is. I walk funny, and because of the fusing there is nothing I can do about it. My biggest issue is not being able to put on my socks on my right foot, because of the fusion of the leg bone into the hip I cannot manage to bend enough for that to happen. So I always have to count on somebody to put my socks on and like today my shoe came untied so I need to gracefully ask one of my co-workers to tie my shoe. (how embarassing for me, but what can I say just got to do it). My job does not help me with the exercises, because for most of the day I am sitting in a chair, creating on site and adding more pics of beads to our large inventory, so now I am trying to figure out how to get rid of the belly the only thing that really bothers me, it’s not that big, but don’t want it getting worse because it will surely put a damper on things. But every day I get my daily dose of the word. Which helps me and gives me sustance for the day. Now on my days off my favorite passtime is trying new recipes, why don’t u check them out. You will love them.

Wow, nothing like waking up and feeling up to something

Woke up today and things are not bad. The pain is there but tolerable. So we will try to make the best of this day. Have checked the new sales place on works site today which is www.ibead.com. If you are into beading then this is the place to get your supplies. We are also getting ready to move which is pretty exciting. And we are looking forward to it.

In a bit haft to pick up my daughter from work.

And then I head off to my second job at Costa Brazil Tours.

Mostly consulting so my son will follow and go with me. Will try to teach him some things and tricks of the trade. Like I said feeling pretty good today and the AS is not bothering me. If anybody is out there and has seen this please let me know where I can find a post of a song that speaks about AS. There is somebody that wrote a song and I cannot find the website anylonger. But would love to find it again.

AS is worse with bad weather…

No doubt in my mind. Ankylosing Spondylitis sufferers, suffer even more when the weather is bad, it started raining yesterday and my pains doubled. I guess the dampness and the drop in temperature are not helping after the intense heat wave we were heaving.

But my joins are acking like crazy, I cry only on words here because I dont like to bother those that surround me with my pain, its not there fault that I have been commited to AS. After all its nobodys fault I just wish they could find a cure. Not pain killers because those are like bandaids that haft to be oftenly changed and maintained.

Wow at least my hope keeps me going, I just did not want anybody else to go through what I experience with pain, i dont think anybody imagines the pain we go through. Oh well I am hanging in there will be back soon with some other outcry….. Thanks for bearing with me….

 

When did I find out….

About 14 years ago when I moved back to the US. I finally found out what for so many years has brought be to excruciating pain. I haft to say that looking back on life. Even though AS is genetically generated. I started having symptons at the age of about 11. Had pains that no hospital and doctor could figure out what they were. Was always diagnosed with other things. Be honest with you having AS is tough because I dont think anybody understand how painfull it really is.

This is basically how it works. You are born with a lack of a gene. Your body produces too much calcium. You live in 24 hours inflamatory process in your body. All the calcium created is then deposited between your joints, which in turn slowly eats away at all the cartilage that is located there, and if you are not mobil enough to keep the movements up you will eventually loose the mobility of that joint because cartilage will be gone and it will turn into a entire bone structure.

During that process is where the excrutiating process occurs. Imagine buying a brand new Jeep. Taking of the shocks and going for a strole on the worst country road you could find. At 100mph. It will certainly be a very harsh ride. Well that is what I deal with 24 hours a day. Pain in my joints because of lack of cartilage, so my bones are rubbing one against the other. Not the way things were intended to be. And until there is fusion the pain does not subside. But after the fusion you have the loss of mobility, so its a never ending cycle.

I have been through so many doctors its not even funny. To me most dont care. It just another car on the assembly line. In fact you can problably can count on your hand the doctors that really care now a day. They are desensitized and carry it on as if it was a general motors car assembly line. Sorry to be blunt but that is how I feel. Specially here in the USA.

Two years ago I decided to abandon medication. My problem does not have a cure, the drugs only produce patches for the real problem, they dont fix anything. Only maintain the levels of inflamation low and confortable. Well I am a christian and my FAITH keeps me going. I have learned to control my pains with my mind. Of course from time to time its impossible because when the flair up come nothing holds things back but for the most part I control my pains and suffer quietly.

I alway look for new alternatives and specially natural things, have learned to cut back on certain foods that generate a more accute state of my 24 hour inflamation. So here I am a AS carrier that is slowly learning to deal with it. I am 42 today. I have my limitations due to my fusions. But I still have not givin up on anything. I do everything with my kids although sometimes the rollercoaster produce tears in my eyes due to the intense pain. But I figure its not there fault and I must enjoy things with them. I regret not being able to play soccer any longer and tennis but I guess that is just par for the course. Will try to come back as much as I can and keep sharing what happens…. Thanks for taking the time to listen to me !!! 

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